Category Archives: Spoonie

SURGERY SCHEDULED!!!

*cross posted*

​Insurance approval!!! Surgery SCHEDULED!!!! 

Good morning! So here’s the scoop-

18 days till surgery (yes I will be counting, it could become very annoying. Sorrynotsorry ahead of time)

7 days left to eat all the food! What I mean by that is, I have 7 days before I go on a very strict liquid only pre-op diet. After surgery, not only will I not be able to eat regularly for a while but my body won’t be able to handle certain foods. So in the next 7 days there are certain things I want to enjoy for maybe the last time. I’m not going crazy bingey, but there are some things i want. EVERYONE who can and wants to is welcome to help me on this endeavor. 
People keep asking me how I’m feeling, the answer is…I’m feeling all the emotions at once. I’m excited and scared and anxious and happy and all these things keep going through my head. I am lucky to have ya’ll in my life supporting me as I take this journey. Thank you so much ❤
(longer post to come, I’m still too giddy to type)

Therapy is not NOT an option

I didn’t go to therapy today. I know I need to but I really just didn’t want to. I surmise that this is for many reasons. Such as…My new antibiotics are making feel I’ll, I’m wicked tired, I know we’re starting to discuss emotional regulation today and my father in law passed away yesterday. All of these are very good reasons (well except one) for not going to group today but what lies under all of them is the fact that I really just didn’t want to go. Now, first of all, I believe it is helping me, more often than not I practice my debt skills to get me through the day. I try to be mindful and shuffle through all the skillfully playing cards they give me in order to cope with the outside world. I do not however like the fact that I have to keep track of what I am doing or follow each class up with himework. It makes me feel like a child and not an adult who is profiting from a group scenario. I think that is one of the reasons I get so snarky about it sometimes. Anyway, I do feel like crap from a third round of antibiotics I’ve been put on and will be going back to sleep for at least a little while.

As I sit here in my dim room with my pumpkin spice frappe (it’s amazing be jealous) I am drawn to the fact that I want so desperately to clean it, yet I can’t find the energy to do it. Granted I haven’t been high on spoons and I use most of them on my kids but there’s more to it than that. You see my room isn’t a mess per say, there are just parts of it that have clutter or need sorted out. There’s a brand new bookshelf that needs to be filled with all the wonderous books that I have. Some whose covers have never yet been opened. I think a lot of this is like my mind, a huge space so full of stuff that only the carefulness can navigate and find there way thtough. Easy to see what’s there but to delve into the hidden spots takes a keen eye and an intelligent mind. Things are hidden away. Locked treasures that you need to find the key for. One of them being my heart. But that box has multiple keys.

Speaking of which, so I was on Whisper the other day, where I received a very nice compliment. I wasn’t sure what part on my post deserved such a compliment but I appreciated it non the less. This is what I wrote.

And in very unhappy news, I am still numb after the phone call I got from the ex husband that his step dad had passed. Now I don’t generally think most people stay close to their ex’s family after a divorce but his mom, step-dad and siblings remained family to me. We exchange cards, pics, calls and whatnot. Living on two different coasts has made it hard on visits and I now feel guilty that he never got to meet my pixie. I am just taken totally aback by the situation. So I will be strong and I will push through. Gotta plan a trip sometime.

My thoughts are churning out endless streams of who knows what at the moment, so I shall  attempt to shut them down and nap. My tip of the day. Self love. Do it!

Sparkle thoughts

Xox

The Theory of Everything 

Not my title I’m afraid, Stephen Hawking’s….It’s 6:02am and I have been watching this movie for the better part of an hour or so. I turned it on because I have been waiting and wanting to see it. And in the wake of my exhaustion and insomnia it seemed perfect at the moment.

Whooping cough, everyone who is vaccinated is vaccinated against it, yet somehow this highly contagious disease has made its way into my house and my lungs as it were. The doctor said that it’s becoming more frequent to see things like this pop up, but that didn’t make me feel any better. It’s frustrating to have something that I’m protected against and that my kids are protected against, attack our immune systems because they have been given the capability to mutate do to the people nor taking vaccine seriously. No this isn’t going to be an antivaxxers rant, I’m just pissed off. I have to listen helplessly as my sprite coughs his lungs up. And I have to watch quite helplessly as the watch me not be able to function because my whole body is wracked from the meds.

Now, generally medication is supposed to make you feel better. But if you put all my autoimmune crap together and add a dose of antibiotics and steroids, I am done. My immunodeficiency made it easy for me to get sick, it also makes my immune system terrible and not want to fight back. Antibiotics are supposed to fight the bad things but the end up fighting the good ones too and steroids just lower the ability for the body to fight anything. 


Everything I am sick, I feel like I am doing something wrong. Now I know there is nothing I can do, not my fault in getting sick. I have two kids, kids get germs, I get sick easily. But when you’re doing it alone, you feel like you have to be healthy all the time. Now I know that’s impractical but it’s the way my brain works. 

I’m in pain enough already,  my fibro flares are daily, the migraines come and go, the exhaustion is constant but I push through. I soldier on because that’s who I am, I am Supermommy.But right now I’m tired, my lungs kept me up last night and I fell asleep on the couch because it was more comfortable than my own bed.

I feel awful because one kiddo is sick and the other isn’t. We’ve been told medicine and fluids and rest. One wants to play and the other to sleep, I am on the precipice of passing out all the time. The meds are rocking my body so very hard. I don’t want to and can’t let myself rely on anyone, not like I used to. It seems to me, sometimes, that I also fail at relying on myself.

I just want things to get better. I guess somedays, I still try to wish away the pain. The exhaustion. I disorders. I try to dream away all that’s gone wrong. I want to wake up feeling good again. I hope that maybe after my surgery I will be able to do that. I’m not putting all my ducks in a row, or my eggs in a basket or whatnot. I’m just hoping that maybe,one day, there will be a way to jump-start my body into producing more spoons. Into making it want to function.

This movie is drawing close to a close, it’s heart-wrenching. His story though, I know, still goes on. As does mine. Hmmm, funny that is, never thought I’d have something in common with the brilliant Stephen Hawking. But we both have stories to tell. 

I’m here for you. For as long as you need me.

I was going to go into detail, tell you of my story but right now I can’t. I can’t because you don’t need to hear my story right now, you need to hear that I will understand yours. If I can’t understand you, I will listen and empathize. I will give you my hand, lend you my shoulder and certainly be a sounding board. I chose these pictures for you because in them I saw my past, I saw my friends, I saw my struggles and I saw the messages I needed so long ago. The reason I became who I am today, I wanted to be the person that I never found so long ago. So these are for you and me.

I am here for you. For as long as you need me.

Sparkles,

Shaye

Xoxo

 

Decompression

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People wonder what I do all day, a woman on disability, a single Mom on welfare, a transplant who after 5 years can count her closest friends in the area on one hand.

People don’t understand why work is so hard for me. Why I can’t keep repetitive motion in my arms, why I can’t be on my feet for more than 15 minutes. They want to blame my weight.

My weight which I have no control over, but I’m working on. My fibro which I have no control over, but I’m working on. My getting sick all the time, which I have no control over, but I’m working on.

So what do I do all day?
I get up
Get the kids off to school
Go to therapy, physical therapy, occupational therapy, aquatic therapy
Followed by more therapy
Then make some calls and/or do some homework
Then maybe shopping or an appointment
Get the kids (or just one kid on m or w)
Do homework
Pick up other kid
Possibly some errands
Homework
BSC comes over/prepare dinner
Wind kids down
Say good night’s
Explain why they can’t sleep in my bed
Say good night’s
Start my own hw or cleaning
Send kids back to bed
Go back to doing my stuff
Explain why kids can’t sleep in my bed
Finally finish my tasks
Take meds
Lay down and hope to sleep
Lather Rinse Repeat
Add in chaos, stress, bills and pressure and that’s my daily routine.

Sometimes I decompress, I deserve to decompress. Even if that means laying on my best friends couch, watching kitchen nightmares while she paints her face.

Everyone deserves a few hours of me time

Shaye
Xoxo

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Don’t put off today, what you may not get to do tomorrow

My friend Tony wrote these incredibly touching words on why you shouldn’t put off I love you’s. Why saying goodbye comes way to fast and why you should always let those near and dear to you know that they have a place in your heart.

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I wanted to share something very important that we should all take to heart.  In this life all you have is your loved ones and your memories, and I finally realized after all these years you have to take advantage of them whenever you can.

There may not be a next fishing trip, the next cruise, the next family get together. I have buried more friends young than I have been to weddings, two this year that started seemingly innocent as a cold.  So don’t take for granted that there will be a next time, don’t let it get to “it’s been far too long” because you never know when too long will become too late.

Don’t be afraid to take that trip, spend the money, do something out of your comfort zone because that’s where our best memories come from.  Nobody talks about how awesome it was to sit home alone instead of making memories and I have made that mistake all too many times myself.  Don’t be afraid to tell your friends you love them, that they mean something to you.

Spend the money, spend your time, make things happen with the people you care about.  Don’t let the excuses, the laziness, the long drive, the lack of funds, the easy way out rob you of your life experiences.  Money isnt the end goal of our lives, that’s not why we work, its a tool to be used to manifest the life you want to live.  Go out and do it because there’s no guarantee there will be a next time.

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Thank you Tony, you have touch mine and many others hearts with your words

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I’ve Never Had a Broken Heart…

…Until now

I don’t think I have ever cried as much as I have in the past two days. those silent angry tears and then those sobbing loudly and not being able to say a word tear.s I felt my heart turn to glass and shatter to the ground beneath me. I felt my soul rip in two. And then after the tears settled and my little brother swooped into the rescue I am now numb.

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Not totally numb, not numb like I can’t feel. Numb like I can feel but I don’t want to. The tears still glisten on my cheeks when I read certain things. I am pretty sure his voice would paralyze me. And seeing him would tear me to shreds all over again. But I will be ok.

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I will be ok because I have to be ok. I have to be ok firstly for myself. I need to regroup and refind myself. I don’t know who that person is. I don’t know if I ever really had a chance to find her. I have been so any other people that I don’t know how many of then have really been truly me. Except the me that I was when I was with you. You got to see the real me. Because I never felt the need to hide her from you. But now I have to find her again.

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I will be ok because of my kiddos. I have to show them what a strong mommy they have. I have to show them what being a single parent is about. I have to be ok because they take their cues from me and I am going to be the one to show them what the world is like. I have to show them that no matter what the circumstance is, they can overcome it.

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I have never truly felt heartbreak until you broke my heart. But I am not mad at you for it. I will never hate you for it. Though loving you for it is a little off the deep end even for me. I will always love you and that part of my heart will always be yours. Will I be alone forever, no I will always have the two beautiful children that I love and cherish so much by my side. And I promise you are always invited on wrestling nights.

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Shaye

xoxo

On the road – SoundCloud

Listen to On the road by Shaina Abbs #np on #SoundCloud

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This is NOT a Love Story

The first of many books I stated, let me know what you think

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This is NOT a love story! And what I mean by that is that this is some mushy gushy story about love triangles, about some guy or girl shaped my world or any of that nonsense. Though if I really think about it those aspects are in there. However, this is NOT a love story. I will not let you categorize it as such, much like Disney categorized Frozen as a sisters story when it WAS a love story. This, at least I think is more of a suspense thriller, but most people would disagree…Granted most people can’t see inside my brain. Hell I can’t even see inside my brain. Ok off track here a little bit. Anyway, now that we are clear what this isn’t, let me tell you what this is.
This is MY story; yeah get your chuckles out now. I know what most of you think of me, even some hell probably some of those who I’ve chatted up in the grocery store line. I know what you’re thinking. And no, I am not a conspiracy theorist or any of that nonsense, I just know what mask I where when and how people judge me in relation t such. Hell, I’ve burned some of those masks years ago and people still remember them. They are seared so hotly into people’s brains that I will never be who I am today but always who I used to be. So, this is a story without the mask, or at least I hope I can be brilliant honest and make it through. This is the story I should have typed a thousand times in a thousand different ways and I didn’t…
I have a lot of good excuses why I didn’t, but nothing that really gets me out of it. I have 5 fucking stories on my computer, 5! And they each have at least 2 chapters…One of them even had a PROLIGUE! And they are genuine stories that I hope to finish someday, but I can’t put my heart back in the place it was when I was writing them, does that make sense? Ok so by now you know that in person I have many masks, I make a lot of excuses and totally judge books (and movies) by their cover (and tag lines…see first paragraph). Let’s add to the stack shall we? I often go off on tangents that no one can follow (be prepared), I can be very sexual and potty mouthed, and sometimes I just out and out lie…Granted I think it’s more of a retelling of the story in a more fanciful fashion but when push comes to shove, I lie. If you have to ask why at this point I would tell you because I like to. See I told you a suspense thriller would be more my story.
So here I am baring my soul, to the world. Or at least I hope to. In this story that is not about love, though there is love in it. A story full of stories, full of unheard truths and confessions. Maybe I’m repenting for some bad shit I did in a past life, but all I got from all the oogie boogies down in New Orleans where that something really bad happened in a past life but they couldn’t tell me. I think I am writing my story because it is time, or that I am running out of time. No I am not suicidal, I am literally running out of time, I was supposed to write 50,000 words by the month of December and as of right now my word count is 607. I think if I can pound out 50,000 words in two days I would be incredible proud of myself but incredibly worn out. But I made a promise to someone in New Orleans that I would finish a book by the beginning of this year and I broke that promise. I hate breaking promises. So now it’s time to promise myself I will finally finish what I have started. For once in my life have something to look back on and say hey you…look at that, not only do you make beautiful kids, bake a mean apple pies and have a gay harem that puts the world to shame…but you wrote a fucken book. Go team you.
Now that I have gotten a minor introduction out of the way I guess we should start with my childhood right? I don’t have a lot of memories as a kid, but I have flashes of them, if that makes sense. I look through photo albums and I know faces and names and not a lot of details. Every once in a while a very clear memory will pop up in there and I will blurt it out, but those memories are so sporadic, sometimes I wish they would either stay or go away completely.
©S.R.Gray 2016

Writing a book

What do you do when you feel like your soul has been ripped in two? You write…at least I wrote or try to. I have written a lot of little things in the past few years, I ham going to show you all of it. Because I will now hide my thoughts, feelings or actions anymore. I have to start to live. at 32 it’s hard to do that when your heart is shattered by the person that taught you how to love. That your kids call Daddy. But I will be ok when the tears dry up. or i can find a new bottle of glue and duct tape.

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