Not my title I’m afraid, Stephen Hawking’s….It’s 6:02am and I have been watching this movie for the better part of an hour or so. I turned it on because I have been waiting and wanting to see it. And in the wake of my exhaustion and insomnia it seemed perfect at the moment.
Whooping cough, everyone who is vaccinated is vaccinated against it, yet somehow this highly contagious disease has made its way into my house and my lungs as it were. The doctor said that it’s becoming more frequent to see things like this pop up, but that didn’t make me feel any better. It’s frustrating to have something that I’m protected against and that my kids are protected against, attack our immune systems because they have been given the capability to mutate do to the people nor taking vaccine seriously. No this isn’t going to be an antivaxxers rant, I’m just pissed off. I have to listen helplessly as my sprite coughs his lungs up. And I have to watch quite helplessly as the watch me not be able to function because my whole body is wracked from the meds.
Now, generally medication is supposed to make you feel better. But if you put all my autoimmune crap together and add a dose of antibiotics and steroids, I am done. My immunodeficiency made it easy for me to get sick, it also makes my immune system terrible and not want to fight back. Antibiotics are supposed to fight the bad things but the end up fighting the good ones too and steroids just lower the ability for the body to fight anything.
Everything I am sick, I feel like I am doing something wrong. Now I know there is nothing I can do, not my fault in getting sick. I have two kids, kids get germs, I get sick easily. But when you’re doing it alone, you feel like you have to be healthy all the time. Now I know that’s impractical but it’s the way my brain works.
I’m in pain enough already, my fibro flares are daily, the migraines come and go, the exhaustion is constant but I push through. I soldier on because that’s who I am, I am Supermommy.But right now I’m tired, my lungs kept me up last night and I fell asleep on the couch because it was more comfortable than my own bed.
I feel awful because one kiddo is sick and the other isn’t. We’ve been told medicine and fluids and rest. One wants to play and the other to sleep, I am on the precipice of passing out all the time. The meds are rocking my body so very hard. I don’t want to and can’t let myself rely on anyone, not like I used to. It seems to me, sometimes, that I also fail at relying on myself.
I just want things to get better. I guess somedays, I still try to wish away the pain. The exhaustion. I disorders. I try to dream away all that’s gone wrong. I want to wake up feeling good again. I hope that maybe after my surgery I will be able to do that. I’m not putting all my ducks in a row, or my eggs in a basket or whatnot. I’m just hoping that maybe,one day, there will be a way to jump-start my body into producing more spoons. Into making it want to function.
This movie is drawing close to a close, it’s heart-wrenching. His story though, I know, still goes on. As does mine. Hmmm, funny that is, never thought I’d have something in common with the brilliant Stephen Hawking. But we both have stories to tell.